Your Genes, Your Health
a multimedia guide to specific individual genetic disorders from the Dolan DNA Learning Center at Cold Spring Harbor Laboratory.
http://www.yourgenesyourhealth.org/ |
Canadian Association of Genetic Counsellors
works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.
http://www.cagc-accg.ca/ |
Chromosome 9P- Network
international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome.
http://www.9pminus.org/ |
Genetic Alliance
provides a global resource for genetics information including a directory of condition-specific lay advocacy member groups.
http://www.geneticalliance.org/ |
Genetic Health
offers general information on conditions, DNA mutations, genetic testing, and research participation.
http://www.genetichealth.com/ |
Genetic Interest Group
national U.K. alliance of organizations which support children, families, and individuals affected by genetic disorders and genetic diseases.
http://www.gig.org.uk/ |
The Stennis Foundation
Raising public awareness regarding Metachromatic Leukodystrophy (MLD) as well as funds for MLD research.
http://www.stennisfoundation.org/ |
Gene Clinics
Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.
http://www.geneclinics.org |
Your Genes, Your Health
The DNA Learning Center's multimedia guide to genetic disorders. Complete in depth articles about each disease listed.
http://www.ygyh.org |
Alagille Syndrome Alliance
Worldwide support network for people who care about people with alagille syndrome.
http://www.alagille.org/ |
The Alkaptonuria Society
An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources.
http://www.alkaptonuria.info/ |
Joubert Syndrome Foundation
Organization, conferences and contact details. FAQs about the disease, information center and resources.
http://www.joubertfoundation.com/ |
Costello Kids
Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links.
http://www.costellokids.co.uk/ |
The Sturge-Weber Foundation
A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
http://www.Sturge-Weber.com |
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